I’m Kasey, I currently live in federal housing in Eastern Oregon. I have experience in a handful of community living arrangements, including crisis communities from domestic violence shelters, homeless shelters, a food coop, and medical marijuana farms (before rec was legal here). I have a lot of experience managing childcare, support for disability inclusion, universal design for accessibility, and LGBT+ events.
I’m here as part of an ongoing effort to either find or create a community that has space for families like mine - I have two children with a wide variety of disabilities, and it is a constant struggle to keep them out of residential facilities or institutionalization. Behavior disabilities are the only one I frequently find no access or inclusion for, especially when you take into account the financial aspect of caring for someone in this context. I am also neurodivergent and disabled, and this adds it’s own layer.
I’m currently exploring starting a therapeutic community. In my state if an adult has a developmental disability, there is an inclusive independent living option that supports them and their children, their whole family of choice, regardless of income. While the funding pathways already exist, there is no such program that provides the same arrangement for children who are disabled. As it sits, over 60% of children in my states foster care program are disabled - most of them surrendered voluntarily due to this specific lack of support.
Intentional community is the way forward here. I’m just not sure how to start.